After months of seeing doctors and being told that my DD needs to learn to run so she is not so hard on her feet, she was diagnosed with both Raynaud’s and Perniosis/Chilblains.
Basically both are conditions that when your toes and/or fingers are exposed to cold, they turn blue and/or red and swell up. It has to do with the constricting of blood vessels which when they heat up again results in blood pouring into the surrounding tissue. (This is an oversimplification but I am sure you get the idea).
In December she woke up with swollen bright red toes. We thought she had been bitten by a spider because she has a strong reaction to bug bites. But the swelling and redness persisted for over two months. I researched conditons and went back to the doctor asking if she has Raynards. At first I was told no. But at a follow up visit when her feet almost looked normal, her toes turned blue in a matter of a few minutes. This led to multiple blood tests and return visits to the dermatologist and rheumatologist, both of whom confirmed the diagnosis.
Both are rare diseases and it is rare for them to present with blisters, like in my DDs case. All that can really be done is to keep the toes warm and dry. Luckily for us her condition does not appear to be associated with more serious underlying illnesses.
I guess the moral is that parents know when there is something wrong and to be persistent.